Take These Important First Steps
- Learn what causes LAM, treatment options and management of this disease, as well as how to find support.
- Talk to your healthcare provider about your diagnosis to better understand how LAM will impact your life and how to best manage it.
- Find a specialist. LAM is a rare disease and getting treatment from a specialist ensures you will get the most up to date treatment options. Your specialist will help monitor and adjust your treatment plan for the best health outcomes.
Connect with Others
No person facing chronic lung disease should go through it alone. There are online and in-person support groups available. Finding a support group early in your journey will provide you with more opportunities to get information about your disease, empower you to better manage your symptoms and give you the support you need.
- Better Breathers Clubs (in-person support groups)
- Living with Lung Disease (online support community)
- Lung Helpline Our Lung HelpLine is open seven days a week and is staffed by lung health experts. We are here to provide you with the support you need and the answers you are looking for.
- Find support through the LAM Foundation
Financial Concerns
If the cost of medical treatment is a burden for you and your family, you should talk to your healthcare team about your concerns and see what options are available. You can learn more about financial assistance that may be available to you by contacting the Lung HelpLine.
Clinical Trials
When treating your lung disease, it is important to consider all options. Talk to your healthcare provider about whether you would be a candidate for a clinical trial.
Learn more about current research studies related to LAM.
Reviewed and approved by the American Lung Association Scientific and Medical Editorial Review Panel.
Page last updated: February 3, 2026
