PF Stories

Jose A. My name is Jose Armas, I'm a 64-year young Latino male to recently went through a bi-lateral lung transplant. I was diagnosed with IPF. At my worst, I was at a lung function of 42%. My last spirometry came in a 131%—WOW. 

Eric W. I was in my mid 40's, a practicing primary care physician for both children and adults, a husband, and father of two - the prime of my life.

Neetu B. My father was diagnosed with pulmonary fibrosis on April 19, 2021.

Theresa C. I had IPF in 2017. I had to have lots of tests in 2018. I was then placed on the transplant list for 13 months.

Wesley F.

Tom M. I was diagnosed with IPF in 2019 and have been wearing oxygen for a little over a year now.

Pam C. I started coughing from what I thought was a virus in November 2011. It never went away.

Robert W.

Kristie C. My Dad, Raymond Paul, was diagnosed with IPF in 2015.

Dianne H. Pulmonary Fibrosis has affected my everyday life for almost five years.

Brenda B. My mother died from pulmonary fibrosis in 2008. She was diagnosed and given five years but she lived eight.

Delores M. I was recently diagnosed with Pulmonary Fibrosis.

Debbie H. I am a Family Nurse Practitioner, diagnosed with NSIP for only two months and this has devastated my life in a short time period.

Jim H. In 2013, I was diagnosed with a disease that has no determined cause or cure. My doctors told me that my lungs would deteriorate but they couldn’t predict at what rate. I was instructed to get my affairs in order and enjoy the rest of my very-limited

Dawn M. Thank you for allowing me to share my story. My mother had suffered for years with difficulties breathing. She was told she had asthma, and then sarcodosis. My folks moved from the Midwest to the southwest to retire as well as to help my mother breat